Life with Rare Diseases and a Passion for Guitars.
Raising Awareness for Rare Diseases one Guitar at a time.
Raising Awareness for Rare Diseases one Guitar at a time.
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Your contribution will enable us to continue to provide Rockstar Dreams and Guitars to those battling Rare/Terminal Disease. We are very grateful for your generosity.
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Our amazing team of regulars and part-time volunteers , business sponsors, and private sponsors are dedicated to help make this project a success. Would you like to help us reach our goal? Get in touch for more information!
This Page is to organize and support the Squishy Guitar Project.
This project was brought to life due to the medical battle of my daughter Alexandra, who's nicknamed "Squishy". Alexandra is a 5 year old Medical Warrior with MAND MBD5 2q23.1 gene deletion, metabolism error of fatty acids and amino acids, Complex 3 Mitochondrial Dysfunction
This Page is to organize and support the Squishy Guitar Project.
This project was brought to life due to the medical battle of my daughter Alexandra, who's nicknamed "Squishy". Alexandra is a 5 year old Medical Warrior with MAND MBD5 2q23.1 gene deletion, metabolism error of fatty acids and amino acids, Complex 3 Mitochondrial Dysfunction of the CYTB gene and Glycogen Storage Disease.
The Squishy Guitar Project is a registered 501 c3 Non Profit to help raise awareness for all the children battling daily due to a rare disease.
We focus on raising awareness and support for all children battling rare diseases. We bring joy to the lives of these patients with a guitar and rockstar dream. We aim to make Rare Disease Awareness more mainstream to ensure Rare Disease Patients get the healthcare and funding needed for a quality of life. Raising Awareness for Rare Diseases, One Guitar at a time.
Your support and contributions will enable us to meet our goals for the Squishy Guitar Project. Your generous donation means the world to us.
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160 Guitarists around the world responded within days to give shout outs of encouragement to our Latest Recipient that's in 100 Day Isolation due to Severe Aplastic Anemia with Bone Marrow Transplant
Angie asking guitarists to send a shoutout for Aiden.
Brad Bourque is 1 of 85 around the world with CLN5 Battan Brain Disease. Brad is now an Honorary Member of his favorite band,
LA ROXX and the proud owner of a Squishy Guitar Project Guitar! Brad makes Rare Diseases look good! Keep Rocking Brad!
Please help us celebrate Squishy’s life and raise awareness for Rare Disease. Donate to the Squishy Guitar Project today.
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